My face is having uncontrollable spasms. Great. It hurts really, really, really bad.
I think part of why I have trouble explaining pain to the doctor is when they ask about the pain scale I always think “Well, if someone threw me down a flight of stairs right now or punched me a few times, it would definitely hurt a lot more” so I end up saying a low number. I was reading an article that said that “10” is the most commonly reported number and that is baffling to me. When I woke up from surgery with an 8" incision in my body and I could hardly even speak, I was in the most horrific pain of my life but I said “6” because I thought “Well, if you hit me in the stomach, it would be worse.”
I searched and searched for the post this graphic was from, and the OP deactivated, but I kept the graphic, because my BFF does the same thing, uses her imagination to come up with the worst pain she can imagine and pegs her “10″ there, and so is like, well, I’m conscious, so this must be a 5, and then the doctors don’t take her seriously. (And she then does things like driving herself to the hospital while in the process of giving birth. Probably should have called an ambulance for that one!)
So I found this and sent it to her. Because this is what they want to know: how badly is this pain affecting you? Not on a scale of “nothing” to “how I’d imagine it’d feel if bears were eating my still-living guts while I was on fire”.
I hate reposting stuff, but I’ll never find that post again and OP is deactivated, so, here’s a repost. I can delete this later, i just wanted to get it to you and I can’t embed images in a chat or an ask.
This is possibly why it took several weeks to diagnose my fractured spine.
Pain Scale transcription:
10 – I am in bed and I can’t move due to my pain. I need someone to take me to the emergency room because of my pain.
9 – My pain is all that I can think about. I can barely move or talk because of my pain.
8 – My pain is so severe that it is difficult to think of anything else. Talking and listening are difficult.
7 – I am in pain all the time. It keeps me from doing most activities.
6 – I think about my pain all of the time. I give up many activities because of my pain.
5 – I think about my pain most of the time. I cannot do some of the activities I need to do each day because of the pain.
4 – I am constantly aware of my pain but can continue most activities.
3 – My pain bothers me but I can ignore it most of the time.
2 – I have a low level of pain. I am aware of my pain only when I pay attention to it.
1 – My pain is hardly noticeable.
0 – I have no pain.
It’s also really important to get this kind of scale to people who have chronic pain, because chronic pain drastically lowers your perception of how “bad” any kind of pain actually is, and yet something like this pain scale is extremely user friendly.
For example, if someone asked me how much pain I’m in at any given time, I’d say hardly any, and yet I’m apparently at a chronic 2.5, and it only goes up from there depending on the day.
Depression is an evil monster and if you let it win. It’s game over. No matter how destructive it is, you can learn some valuable lessons. These will make you stronger and compassionate towards the suffering of other human beings. After years of torment and struggle, I now see life differently. It isn’t as dark anymore. Depression has grown empathy and understanding in me. Here are the top 10+ lesson I have learned:
Okay so I checked out that keyboard I just reblogged and this is what I found.
The keyboard is designed to be used by people who cant use conventional keyboards and that’s super cool. It runs at ~$400 each, but they have a payment plan which makes it easier for people to get and use which is cool. Heres the website.
I’m gonna keep poking around but so far it’s pretty neat to me.
@thebibliosphere would something like this help you? I know it’s a little pricey.
I have no idea, I’d need to get my mitts on one and see how it affects my wrists, but it looks like it might take the impact strain off my fingers from the actual typing motion? Idk, it’s cool though, I know a lot of folk who could use something like that.
@thebibliosphere have you seen the video review on the orbitouch homepage? It’s like a sign! The reviewer describes typing power moves and demonstrates on a word that is typed all in purple, saying “You can bang ‘em out by moving just one hand.”
And the word? The word is Joy.
(Also the thing apparently ships in a tube full of rubber ducks…)
Have you ever tried using the Kensington Trackball Mouse? I have really problematic issues with my wrists and I love this thing. It has a twist knob to scroll and the biggest rolly ball that I’ve ever seen with four clicker buttons that I think may be programmable but I don’t really know because I haven’t tried to do it yet. REALLY responsive and highly recommended! 🙂
Here’s a link to the Amazon listing, but you can buy it from multiple places: http://a.co/d/hMjCWGP
Thank you, I’ve got a really great ergo mouse at the moment but it never hurts to try more things that might save my hands from becoming perpetual claws of pain!
hello! I don’t know if anyone has already made a post about this before, but I just stumbled upon this app made specifically for when you’ve gone into a nonverbal anxiety attack!!!
it was made by Jeroen De Busser who is an autistic computer science student.
the app is really easy to use! all you do is open it and hand your phone to someone you need to communicate with during an attack but physically cannot, and it shows this cool little alert for the person to read, and then it takes them to an easy to use chat (that looks a lot like texting! except both of you are communicating using the same device).
the alert message is completely customizable and you can have it say whatever you need!
the app is called Emergency Chat and it’s available in the Apple Store and google play store.
I highly recommend it to anyone who might need it 🙂
OH MY GOD?!?!?? BOOST
That’s so bootiful!
This seemed like a really useful tool for anyone to use, especially people who know someone who deals with this or work with kids who may experience meltdowns too, so I downloaded it and made the alert message on mine say this:
The generic Adrenaclick will cost $109.99 for two doses, compared with $649.99 for the same amount of drug in an EpiPen. That’s good news, both for financial and safety reasons: STAT reported last year that some parents and institutions had begun filling up syringes with epinephrine as a cost-cutting measure, a DIY solution that could pose great risk to the children who may have eventually needed injections. A more affordable alternative will help ensure safer epinephrine injections.
That’s assuming, though, that the people who need these devices know exactly what to ask for when they’re sitting in their doctors’ offices. Otherwise, they’ll still be stuck with the overpriced product. Here’s why: The mechanism by which Adrenaclick injects the drug is slightly different from EpiPen’s mechanism, so the Food and Drug Administration has ruled that the two are not therapeutically equivalent. That distinction is important because it means a prescription for an EpiPen cannot be filled with Adrenaclick. If you want the cheaper option, you have to have an Adrenaclick prescription.
You must ask your doctor for an Adrenaclick prescription!
I also found a coupon from Impax on 0.15mg and 0.3mg epinephrine injection, USP auto-injectors, which appear to be the generic version of Adrenaclick; these coupons cover up to $100 per pack for 3 packs of these injectors (6 total injectors).
On a job application: “What is your preferred name and gender, we value diversity, so be honest.” Me:
I don’t know what this means. I’ve never filled out a form that said that.
they’re asking you to disclose if you’re transgender. legally, they can’t ask or consider someone’s gender in hiring someone, so they get around it by giving you the option of telling them yourself. if you “volunteer” the information, that’s legal.
its like when they try to figure out if you’re poor by asking if you have “reliable transportation,” hoping that ppl will explain that they dont have a car without actually being asked. things like that.
its a scummy thing to do, especially in this case where theyre presenting it like a “diversity” thing.
^^^^
Never answer those questions honestly if you actually want the job.
My managers have personally told people that anyone who puts anything like that outside of just “male or female” gets their application tossed immediately. Btw if an interviewer asks if you have reliable transportation, don’t say anything but “yes I do” that’s it!!!!! Don’t say another word don’t say you take the bus or walk or bike or get rides or uber don’t say anything!!!!! Just say yes and that is it they cannot require any sort of proof of transportation.
Shit. I didn’t know that about transportation but I’mma start doing it now.
I just took a class where one of the things we had to go over was interviewing to hire.
The entire process was super gross and made me feel scummy and unethical. SO!
be careful about your cleaning products and dont get yourself injured or potentially killed ok
why it so dangerous to be clean
As someone who’s job is to handle chemicals like this, I need to state that this information is IMPORTANT. Plenty of people have accidentally injured or killed themselves at home because they didn’t know what kind of reaction certain substances have with one another. Play it safe and don’t mix chemicals.
Also don’t use bleach to clean up urine it’ll create chloramine bc of the ammonia in it and you can give yourself chemical pnemonia that way
Every time I see “helpful” posts telling people to mix these things while cleaning I cringe with my entire body.
PETA: They’d rather spend their money on publicity campaigns than on the animals in their care. PETA killed 73.8% of the animals in their care in 2015 (x)
FCKH8: Is a for-profit company that exploits oppressed groups for money. They’re also wildly uninformed, and spread misogyny, cissexism and bi/panphobia, as well as stealing their posts/designs (x)
Autism Speaks: They spend most of their money on researching a way to eliminate autism, heighten the stigma against autism and don’t have a single autistic person on their board (x)
Please support other, better charities, and feel free to add any others you can think of to this.
Susan G. Komen for the Cure: CEO makes insane amounts of money, they deny a lot of requests for wigs/help with treatment/etc., and have attempted to sue other charities that use the color pink as part of their anti-breast cancer campaign. ( xxx )
The Salvation Army: They promote the hatred of LGBT+ people, work with fundamentalist Christian groups to support conservative politics and rip off and exploit workers. ( xxx )
Wounded Warrior: They take money that should be spent on veterans and blow it on huge opulent parties for the company bigwigs. 26 million in 2014 alone wasted! ( xxx )
^ Important reminder to NOT waste any money donating to these groups
Reblogging because of the added info about Wounded Warrior.
A good way to know if a nonprofit you’re donating to is allocating their money in the right way is to check out their Charity Navigator rating: http://www.charitynavigator.org
Signal boosting, the bell ringers are out in force, and this info is too important.
Figment, the recently closed writing website, has just launched (after a long delay) their long-awaited successor to figment known as Underlined, where users can post their work and receive feedback, supposedly.
DO NOT USE UNDERLINED. DO NOT POST YOUR WORK ON UNDERLINED.
Underlined’s terms and conditions contains a clause stating that the rights to all your work that you post on their website belongs to them!!!!
Underlined belongs to Penguin Random House. This is an extremely dirty trick for them to play on writers, especially young writers and children, who come to the internet to get feedback and will lose the rights to their work. Please boost!!!
For my writing friends looking for an online writing community, DO NOT USE Underlined.
I went to confirm @greater-than-the-sword‘s post, because seriously publishers are still pulling this garbage? And yes, they are. If you want to check out the full terms and conditions, have at it. They are full of writers’ nightmares, a few of which I’ll highlight under the cut.
Have you eaten in the past three hours? If not, get some food — something with protein, not just simple carbs. Perhaps some nuts or hummus?
Have you showered in the past day? If not, take a shower right now.
If daytime: are you dressed? If not, put on clean clothes that aren’t pajamas. Give yourself permission to wear something special, whether it’s a funny t-shirt or a pretty dress.
If nighttime: are you sleepy and fatigued but resisting going to sleep? Put on pajamas, make yourself cozy in bed with a teddy bear and the sound of falling rain, and close your eyes for fifteen minutes — no electronic screens allowed. If you’re still awake after that, you can get up again; no pressure.
Have you stretched your legs in the past day? If not, do so right now. If you don’t have the spoons for a run or trip to the gym, just walk around the block, then keep walking as long as you please. If the weather’s crap, drive to a big box store (e.g. Target) and go on a brisk walk through the aisles you normally skip.
Have you said something nice to someone in the past day? Do so, whether online or in person. Make it genuine; wait until you see something really wonderful about someone, and tell them about it.
Have you moved your body to music in the past day? If not, do so — jog for the length of an EDM song at your favorite BPM, or just dance around the room for the length of an upbeat song.
Have you cuddled a living being in the past two days? If not, do so. Don’t be afraid to ask for hugs from friends or friends’ pets. Most of them will enjoy the cuddles too; you’re not imposing on them.
Do you feel ineffective? Pause right now and get something small completed, whether it’s responding to an e-mail, loading up the dishwasher, or packing your gym bag for your next trip. Good job!
Do you feel unattractive? Take a goddamn selfie. Your friends will remind you how great you look, and you’ll fight society’s restrictions on what beauty can look like.
Do you feel paralyzed by indecision? Give yourself ten minutes to sit back and figure out a game plan for the day. If a particular decision or problem is still being a roadblock, simply set it aside for now, and pick something else that seems doable. Right now, the important part is to break through that stasis, even if it means doing something trivial.
Have you seen a therapist in the past few days? If not, hang on until your next therapy visit and talk through things then.
Have you been over-exerting yourself lately — physically, emotionally, socially, or intellectually? That can take a toll that lingers for days. Give yourself a break in that area, whether it’s physical rest, taking time alone, or relaxing with some silly entertainment.
Have you changed any of your medications in the past couple of weeks, including skipped doses or a change in generic prescription brand? That may be screwing with your head. Give things a few days, then talk to your doctor if it doesn’t settle down.
Have you waited a week? Sometimes our perception of life is skewed, and we can’t even tell that we’re not thinking clearly, and there’s no obvious external cause. It happens. Keep yourself going for a full week, whatever it takes, and see if you still feel the same way then.
You’ve made it this far, and you will make it through. You are stronger than you think.
Rambles & Rabble 